Story by Caitlin Gibson from The Washington Post
Our very own Eileen Lee, who is part of the LifeLinks CLASS Family Support Center team as a Medically Complex Children’s Coordinator, was featured in an incredible story by The Washington Post!
“Eileen Lee, a service coordinator for the LifeLinks Class Family Support Center in Massachusetts, an affiliated chapter of The Arc, has had similar struggles with her 32-year-old son Michael, who has a severely compromised immune system and an intellectual disability. Michael is now homebound with Eileen, 65, and her 71-year-old husband; Michael’s usual routine — the day program that allows him to work at a company where he inventories and refurbishes old electronics; the volunteer outings at local fire stations — has been halted for the foreseeable future.
“Everything has come to a stop. There is just no place for him to go,” Eileen said. It’s not even safe for Michael to go to Tufts Medical Center, where he receives weekly infusions to support his immune system. Now, a nurse will come to their home, Eileen said, and she worries about even that level of exposure.
“We are taking this so seriously, because if this disease goes to Michael’s lungs —” she paused. “He’s a goner. There’s no getting around it, and it’s so frightening.”
In the midst of the deepening crisis, and reports that overwhelmed hospitals may ultimately be forced to ration care — potentially prioritizing patients who are deemed most likely to survive — parents like Eileen and Lisa are left to consider what that might mean for their children.”